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Vaccine-Preventable Diseases: Personal Stories

I Want Parents to Know About the Additional Meningococcal Vaccine That Could Have Saved My Daughter

“As a mother and a nurse, I was vigilant in getting my children all their recommended vaccinations, including meningococcal vaccination. I was under the common misconception, as many parents are, that the meningococcal vaccine that my daughter received would fully protect her from meningococcal disease, when in fact, it didn’t protect her against meningitis B. Meningitis B outbreaks have recently occurred on several college campuses and the disease can kill a healthy person within 24 hours. When my daughter Kimberly Coffey died from meningitis B in 2012, she was a perfectly healthy 17-year-old high school senior. The meningitis B vaccine was not available to protect her at the time, but it is available in the U.S. now. As a mother who lives every day with the heartache of not seeing my beautiful daughter live the full life she deserved, I want parents to know that without specifically requesting MenB vaccination, in addition to the common meningococcal vaccine (MCV4), your child will not be fully protected against meningococcal disease.” Patti Wukovits, Founder of the Kimberly Coffey Foundation

How My Vaccinated Daughter Died From Meningitis and What I’m Doing About It

“February 2, 2013 my life changed forever. I was told my beautiful and healthy nineteen year old daughter no longer had any brain activity, and that she would die. Those words will forever haunt me. There is no preparation, no training, and no practice for what was to come. The loss of a child is like none other. It is the wrong order. When you lose a child, a piece of you dies as well.”

Alicia Stillman, Director of the Emily Stillman Foundation, writes about the loss of her daughter Emily to bacterial meningitis. One of the missions of the Foundation is to raise awareness of meningococcal disease and the various vaccines that are now available to prevent it.

Ryan Wayne Milley

Ryan Milley was 18 years old when he developed a fever and earache on Father’s Day. During the early morning hours, Ryan entered his parent’s room. He was weak, and in the dim light his mother noticed a rash on his stomach and could literally see blood vessels rupturing all over his body. After 25 years in the medical profession, Frankie Milley knew that her son had meningitis.

Luke Duvall

Luke Duvall, a healthy, athletic 15-year-old, was exhausted on the evening of October 2, 2009 but geared up and played in his high school football game anyway. The next day he awoke feeling worse, and within four days was rushed to the hospital in an ambulance. What followed was an ordeal that included being medevacked to Arkansas Children’s Hospital, put on a ventilator, and being put into an induced coma.

RECENT CONVERSATIONS

Amy Pisani @ EveryChildBy2
Rise in #mumps outbreaks prompts U.S. officials to weigh third #vaccine dose. @bylenasun @washingtonpost https://t.co/iWECOIf8aI
Amy Pisani @ EveryChildBy2
Improved vaccination of adults relies heavily on provider recommendation. #ACIP #vaccines4allages
Amy Pisani @ EveryChildBy2
#ACIP #mumps work group to review risk factors for mumps among 2 dose recipients, benefit of 3rd dose, & examine programmatic implications.
Amy Pisani @ EveryChildBy2
Mumps vaccine effectiveness is estimated at 77% after 1 dose, 88% after 2 dose. 85% of patients in college outbreaks had 2 doses. #ACIP
Amy Pisani @ EveryChildBy2
Despite 19 university #mumps outbreaks in 2016, mumps cases still at 99% decline compared to pre-vaccination era. #ACIP
Amy Pisani @ EveryChildBy2
In 2016 US has seen 2nd largest number of mumps cases since 2006. #ACIP will be evaluating options to prevent & control outbreaks.
Amy Pisani @ EveryChildBy2
RT @SenAlexander:Bipartisan group of committee leaders send colleagues a letter to highlight importance of #vaccines https://t.co/QFLvR6jrwS
Amy Pisani @ EveryChildBy2
RT @NFIDvaccines: #ACIP discussion on need for updated @CDCgov guidance to control #meningococcal disease outbreaks https://t.co/Yk1gIrLb15
Amy Pisani @ EveryChildBy2
RT @kevinault: 95% of vaccinated infants have protective levels of #hepatitisB antibodies after the initial 3 dose series. #ACIP
Amy Pisani @ EveryChildBy2
RT @DrNancyM_CDC:CDC saw most mumps cases in 10 yrs in 2016. Hear #ACIP discussion Thurs 9amET on mumps epidemiology https://t.co/m3x6gqmhqy
Amy Pisani @ EveryChildBy2
CDC #ACIP should celebrate huge achievements to eradicate #polio....and Measles vaccine has saved 20.3 million people in past 15 years!
Amy Pisani @ EveryChildBy2
RT @PeterHotez: THANK YOU to #Texas Reps @michaelcburgess @RepGeneGreen for your support + reaffirmation of VACCINES https://t.co/3J1nRFENH7
Amy Pisani @ EveryChildBy2
Last month shingles kept my family member in hospital in agony. Shingles afflicts 1 million each year. Get vaxed i… https://t.co/d22XGF8WMs
Amy Pisani @ EveryChildBy2
Data reported to #ACIP suggests no real drop in #flu #vaccine uptake among kids this season despite removal of nasal flu mist as option
Amy Pisani @ EveryChildBy2
Lots of time/research goes into monitoring #vaccine safety/efficacy. Need proof? See live stream of #ACIP meeting https://t.co/RnZupToJ5B
Amy Pisani @ EveryChildBy2
RT @DrNancyM_CDC: #ACIP is learning about a new #shingles candidate vaccine this afternoon. Watch live at https://t.co/lsjt5G5AiC
Amy Pisani @ EveryChildBy2
RT @DrNancyM_CDC: Early #flu vax effectiveness estimates data underscore benefit of annual & in-season vax efforts https://t.co/9O09zKMTwo.
Amy Pisani @ EveryChildBy2
Witness 1 way #vaccine safety & efficacy is monitored in U.S. Tune into live #ACIP webcast today & tomorrow. https://t.co/RnZupToJ5B
Amy Pisani @ EveryChildBy2
Attending #ACIP mtg at CDC -Flu killed 29 children this season & vax 48% effective against flu..get vaxed every year!
Amy Pisani @ EveryChildBy2
Our founders are grateful to see continued bipartisan approach to #vaccine advocacy https://t.co/Wt9kuzcycO
Amy Pisani @ EveryChildBy2
Our strong public health policies result of bipartisan commitment to #vaccines via ECBT Board Member @sarahdespres https://t.co/KUplbYfatU
Amy Pisani @ EveryChildBy2
Excited @DrRichardBesser named new Pres/CEO of Robert Wood Johnson Foundation @RWJF https://t.co/RE7MDJYfLK Here's to #1GreatHealthAdvocate
Amy Pisani @ EveryChildBy2
This mom went from posting about the dangers of #vaccines to encouraging others to vaccinate on@Voices4Vaccines https://t.co/rNJv8l1ke4
Amy Pisani @ EveryChildBy2
New vaccine movie 'The Impossible War' will chronicle efforts by Jonas Salk & Albert Sabin to develop polio vaccines https://t.co/cvlyd83HtN
Amy Pisani @ EveryChildBy2
Less than half of U.S. adolescents get #flu shot & even less get #HPV vaccine to prevent cancer. https://t.co/EePu5eXonR #WeCanDoBetter
Amy Pisani @ EveryChildBy2
Vaccines aren't just for kids. Find out how important adult vaccinations are in protecting public & personal health. https://t.co/xNI1nhAIbd
Amy Pisani @ EveryChildBy2
Pew study finds majority of adults agree kids should be required to be vaccinated with MMR to attend school. https://t.co/t6foL07TwQ
Amy Pisani @ EveryChildBy2
How to counter anti-vax? @DrPaulOffit suggests towns start CitizenScientist movement including vax facts… https://t.co/BUNaTpnaXE
Amy Pisani @ EveryChildBy2
My fav mtg of year @AIM_IZ hardest working ppl in US...the Iz program folks who day after day save lives #vaccineswork
Amy Pisani @ EveryChildBy2
National Vaccine Advisory Committee meets Feb 7-8th. See agenda & follow along here: https://t.co/lOP7iagVWR #VaccineOversightExists
Amy Pisani @ EveryChildBy2
Regardless of which team wins we're betting on #vaccines to stop the spread of measles & flu in Houston on #SuperBowlSunday. #TeamVaccine
Amy Pisani @ EveryChildBy2
Last chance to sign in support of federal & state immunization program #funding. Sign by Feb 2, 3pm. Pls RT! https://t.co/RkzXRN4gmB
Amy Pisani @ EveryChildBy2
Don't assume modern medicine can save you. Micheal explains what it was like to watch his sister die from #flu. https://t.co/83qrJIChEi
Amy Pisani @ EveryChildBy2
Sign in support of federal & state immunization program funding. Deadline for signatures is 3pm on 2/2. Pls RT! https://t.co/RkzXRMMFv3
Amy Pisani @ EveryChildBy2
RT @HealthyAmerica1: What is the Public Health Preparedness of our Nation? New from @DaraLieb https://t.co/LDfPEM6LVv via @ShotofPrev
Amy Pisani @ EveryChildBy2
RT @VICNetwork: #SaveVaxFunds Your Signature Needed to Preserve Congressional Immunization Funds https://t.co/KyCWXqjQaF via @ShotofPrev